It’s no secret that many adults with hearing loss wait far too long before seeking help. On average, people wait ten years after symptoms first appear to get treatment. But why? 

A study published in the International Journal of Audiology has one answer: stigma. 

Stigma happens when society labels someone as “different” in a way that feels negative or shameful. The researchers found that for hearing loss, stigma often plays out in two ways:

• Invisible stigma (discreditable): People may hide their hearing difficulties, avoiding social situations or even refusing to wear hearing aids so that others don’t notice.

• Visible stigma (discredited): For those who do wear hearing aids, these devices can be seen as a symbol of “old age” or disability, leading to embarrassment or judgment.

Hearing loss stigma can lead to isolation, stress, lower self-esteem, and delayed treatment. Even when people finally do try hearing aids, stigma can reduce how much they use them or how successful they feel with them.

Interestingly, the researchers cite that stigma doesn’t just affect the person with hearing loss. Family members can also feel it, sometimes called affiliate stigma. They may feel frustrated, embarrassed, or even avoid certain situations because of how others might react to their loved ones’ hearing loss.

To better understand this complex issue, the researchers carried out one of the most comprehensive studies on hearing loss stigma to date. They spoke not just with people who have hearing loss, but also with their families and even hearing care professionals. The findings show that:

• Stigma is a social process shaped by stereotypes, social settings, and personal identity.

• People often wrestle with the choice of whether to admit they have hearing loss or keep it hidden.

• Supportive family members and peers can make a big difference in whether someone seeks help.

The good news? Talking openly about hearing loss, challenging stereotypes, and offering supportive care can help reduce stigma and encourage people to get the help they need sooner.

As one participant in the study put it:

“I just want to be treated as a normal person, as a person that, look, you’re just going to have a conversation with me and that’s it.”

Read the full study here, and subscribe to the RestorEar newsletter for more research updates.